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  • Research with Patients Know Best
    • Accessing the data
    • Consent to access data for research
    • Examples of research about PKB
    • GDPR compliance
    • Protocol templates
    • Research methods
    • Welcome message
  • Evaluation using Patients Know Best
    • Keep Control EU project
    • Polypharmacy: Getting our medicines right
  • Generic Information about PAM
  • Guidance in evaluating PKB
  • Janssen: Pharmaceutical Companies of Johnson & Johnson UK
    • A qualitative evaluation of the Patients Know Best® (PKB) patient-controlled electronic medical record and communication platform in UK HIV services
    • Patients’ and healthcare professionals’ experiences with a patient-controlled electronic medical record and communication platform (Patients Know Best® (PKB))
  • Meet the research team
    • Dr Mohammad Al-Ubaydli, CEO
    • Dr Richard Smith, Chairman
    • Dr Sarah Wright, PhD
    • Mate Varga, BSc, MSc
    • Mrs Maria Xenou BSc, MSc
  • Questionnaire templates
    • Patient Activation Measure ( PAM)
    • Usability questionnaires
  • Research FAQs
  • University of Cumbria
  • Sitemap

Research with Patients Know Best

Welcome to the academic site for Patients Know Best (PKB). 

Please do not hesitate to get in touch with us here or via research@patientsknowbest.com  and we will be more than happy to assist you.


  • Welcome message
  • Meet the research team
  • GDPR compliance 
  • Research methods
  • Consent to access data for research 
  • Ways to access the data
  • Guidance in evaluating PKB
  • Evaluation Protocol templates 
  • Questionnaire templates
  • Evaluation of Patients Know Best
  • Evaluation using Patients Know Best
  • Research FAQs
Subpages (7): Accessing the data Consent to access data for research Examples of research about PKB GDPR compliance Protocol templates Research methods Welcome message

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