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Research with Patients Know Best
Accessing the data
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Examples of research about PKB
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Evaluation using Patients Know Best
Keep Control EU project
Polypharmacy: Getting our medicines right
Generic Information about PAM
Guidance in evaluating PKB
Janssen: Pharmaceutical Companies of Johnson & Johnson UK
A qualitative evaluation of the Patients Know Best® (PKB) patient-controlled electronic medical record and communication platform in UK HIV services
Patients’ and healthcare professionals’ experiences with a patient-controlled electronic medical record and communication platform (Patients Know Best® (PKB))
Meet the research team
Dr Mohammad Al-Ubaydli, CEO
Dr Richard Smith, Chairman
Mate Varga, BSc, MSc
Mrs Maria Xenou BSc, MSc
Questionnaire templates
Patient Activation Measure ( PAM)
Usability questionnaires
Research FAQs
University of Cumbria
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Research with Patients Know Best
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Examples of research about PKB
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Search by Hospital / Organisation
Below you can find a list in alphabetical order of all the organizations/universities/hospitals/departments that have researched and used Patients Know Best and evaluated its usability.
Betsi Cadwaladr University Health Board & Bangor University
BMJ article “How can doctors meet relatives’ information demands?”
Care Information Exchange (CIE)
Connected Health: How digital technology is transforming health and social care (PKB case example 3)
Deloitte Global Organization - Deloitte Centre for Health Solutions
Great Ormond Street (GOSH)
Janssen: Pharmaceutical Companies of Johnson & Johnson UK
JJCCT / PKB collaboration on social impact measurement
Luton and Dunstable University Hospital
Leicester University Medical School
North Bristol NHS Trust
Oxford Health NHS Foundation Trust
Oxford University Hospitals
Patients Know Best effectiveness and impact paper
People-powered health: Health for people, by people and with people
Plymouth Hospitals NHS Trust
Radboud University Medical Center, Netherlands
Sandwell and West Birmingham Hospitals NHS Trust
Surrey and Sussex Healthcare NHS Trust
Swansea Bay University Health Board (SBUHB)
The King's Fund
The Nuffield Trust
University of Cumbria
York Health Economics Consortium
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Betsi Cadwaladr University Health Board & Bangor University
Deloitte Global Organization
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